It’s seven years today an angel clothed in a ‘diagnosis’ stepped into my family.
God knew I had to take lessons in patience, thanksgiving, appreciation, gratitude and carefulness and so in a comical twist, He allowed the devil (seemingly), tamper with our testimony.
Hmnnn! if only the devil knew he wouldn’t have tried that!
Our ‘Mimi mama Holy Ghost Baby girl’ has got the devil sitting shamefaced ??♀because through her, a ‘force of intercessors and advocates for children living with special needs’ was birthed. Hallelujah, she had to be born for the descriptions – challenged, disabled, special…to be changed to ENGRACED ONES.
Through scripture I understood God had been in the business of healing and perfecting ‘special” children. Why then would we rather believe otherwise?
Is it a form of myopia?
If then I have this to say, let your eyes be open! Your MIRACLE IS HERE!
I shouldn’t be the one telling this story. I actually cannot do justice to it. Over the past few months I had tried to convenience my dear friend and sister to share her experiences with the world. I decided to take this step because i thought she was probably being conservative. As i settled down to write i began to understand her reluctance; it is a story too painful to tell. What you’re reading is therefore a fore-taste of the real deal.
How can a mother explain what happened to a baby who was born perfect and could read her alphabets at age 3 and then at 17 unable to even lift a spoon or even do her toileting?
I met Peculiar in church 7 years ago. Her beauty, the smoothness and softness of her skin and especially her hands got me stunned. When I asked why her hands were so tender, her mother responded; ‘She doesn’t use them for anything’. At that point she was 10 years old and now 17.
Just a few weeks back I noticed she couldn’t use those hands to even put biscuit in her mouth. This is a child who was in school and could recite her alphabet. In her lucid moments she still recites a few letters.
Physically this young lady has attained puberty but without consciousness of her identity. This places her in a vulnerable position. I wonder what that family is going through!
She was named Deborah because they had the dream of their daughter doing exploits for the Lord. Hmmmm, I make bold to say my sister; keep dreaming!
We are confident this child would be restored to her self; a Deborah who would shatter the works of Satan the destroyer.
However, could there be someone reading me who can suggest the way forward through a sound and affordable educational programme?
Could there be someone out there who would join the Engraced Ones in lifting up Deborah continually before Jehovah Rapha the healer until her change comes?
27th June 2012, My boy Akorede Daniel made me a mother, yea the journey hasn’t been smooth but God’s Grace has been sufficient!
A beautiful Wednesday, around 2 pm, my son arrived, everything seemed perfect until late that night when we noticed his that his arms were twitching and that he was crying inconsolably and couldn’t suck. In the morning, we were directed to another hospital around us where the doctor gave a diagnosis of birth asphyxia.
I had never heard that word and had no idea what it meant. That day, I cried my eyes out when I saw my newborn struggling in pains. After a while, he went into a coma for 6 whole days! He was just breathing, no movement, no cry! The experience was bitter! On the 7th day, my boy cried, I was so happy. I expressed breast milk and he was given just 0.5ml per meal with a syringe for days, It was tough on me, thank God my mum and mother in law were with me. We were discharged 3days later.
At 6 months my boy didn’t have neck control. I tried to make him sit but he couldn’t, his body was floppy and his right arm was stiff. Throughout our appointments, the Doctor didn’t tell us anything until grandmas saw him and suspected something might be wrong. We then visited another doctor and He told me to go back with his report to my doctor, it was then He directed us to a government hospital to see a physiotherapist.
The physio wasn’t kind at all! He told me my son had cerebral palsy and ask me to go and read about it myself and even sent me out when I couldn’t bear the pain of the twisting, stretching and turning on my poor innocent child.
My hubby consoled me and encouraged me but I couldn’t hold myself. I want to state at this point that my husband has been a pillar. I am aware some spouses are not supportive over such situations but my case is different!
The journey to sleepless and restless nights, eating challenges, physiotherapy sessions, rejection and self-guilt began.
It has been 6years now, though it seems we haven’t achieved much but we will surely get there! Through these years, I have learnt so much on patience and appreciation. I have been hurt through peoples comments, stares and pity but no more!
My hubby has been my pillar, He will always tell me, “don’t worry, God allowed it”, His words gave me that inner strength never to give up. Our families stood by us, even wanted to take custody of our child, but we are determined to care for him ourself, God gave him to us not them!
Happy 6th Birthday my adorable super handsome boy, no matter the delay, you will fulfil destiny! Thanks, Engraced ones for this platform and the support received so far through the School of Grace. We will surely have testimonies.
Good day Ladies and Gentlemen. My name is Abigail Alade. I turned 17 yesterday 10/6/18. I was born and celebrated like any other child until delayed developmental milestones and a Doctor’s diagnosis of Down Syndrome changed that narrative.
I had to undergo several surgeries targetted at making me look like other children. I moved through several schools and teachers to stabilize my reading, writing, body co-ordination and speech.
I did not enjoy the love, accetance and friendship children are supposed to get because of the way I looked. Teachers had no patience with me because I am slower than other children in catching up. Most of them never knew of the condition called dyslexia that I also suffered from. They dismissed me, ‘she’s academically retarded’.
Now, those schools and teachers who rejected me would be glad to know now that I am writing Junior WAEC and other exams to fulfil destiny in life.
My mother tells me of several aunties who got married from our home but never considered me good enough to be in their bridal train.
God who has been faithful to keep me alive, give me parents who did not write me off, teachers who were sympathetic and accommodated me. Friends and family that cared for me, I remain ever grateful to Him.
Today I am known as an Engraced child because His grace has sustained me.
We must remember to look to the positives in all situations, there is always a silver lining. Every blessing is sacred and magical, every being is sacred and magical whatever differences or difficulties they may have.
No one has the right to write of any being because there is no disability in eternity.
Every child should be loved, educated and cared for because there are no special diseases only a SPECIAL GOD.
Hmnnn! if only the devil knew he wouldn’t have tried that!
